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Index of Our Favorite Web Sites
Best Buddies: www.bestbuddiesutah.org mentor and advocacy for high school and up children with severe developmental disabilities. Contact by bestbudies@bennioncenter.org Initial Parent Connections : Parent Support groups through www.familyvoices.org/ for listing of parent support groups in the state. A list serve through “groups.yehoo.com". Type in “utah kids” and sign in. Features a chat group of over 100 parents of children with disabilities for spread of information and supports. You may also wish to search for exceptional children in on the second page of listings for Utah support groups #12. Birth Defects at www.health.utah.gov/birthdefect/ is also preparing an interactive site for children with physical challenges. Also check for National support groups under the Alliance with 600 options http://www.geneticalliance.org/ and www.netnet.net/mums/, the parent to parent program. The Utah Parent Center below is dedicated to resourcing support groups through the state under Family to Family Networks. Review the wealth of information under Medical Home- For Parents & Families at www.medicalhomeportal.org including the excerpted article “You Are Not Alone” by Patty Smith under dealing with your child’s diagnosis. Utah Parent Center - To Provide Training, Information, Referral and Assistance to Parents of Children and Youth with Disabilities which Include Physical, Mental, Hearing, Vision, Learning, Behavioral and Emotional Issues Advocacy to Help Special-needs Children IEP Information.www.utahparentcenter.org Utah Family Center - a resource center affiliated
with the PTA for parents and teachers consisting of a lending library,
parent training and advocacy. Family Voices (National) also local organization
advocating for children with special needs. Allies with Families - a federation of advocating
parents for children’s mental health issues. Provides Information to Parents, Professionals and Individuals with Learning Disabilities. www.ncld.org Parents Helping Parents Parents making decisions for their children This is the web site for very helpful ideas for autism treatment
and efficacy of services. It is complemented by www.floortime.org
Greenspan’s developmental relationship based strategies and
RDI. RDI Connect Our all time favorite web site for shear bulk of info is http://www.familyvillage.wisc.edu/index.html Children and Adults with ADD (C.H.A.D.D.) National Attention Deficit Disorder Association National Alliance for the Mentally Ill Advocacy, Education, Research and Service. www.nmha.org/ Parenting Education - many sites available to
families. www.sbaa.org ( spinal bifida association of America)
Ability Hub Utah Center for Assistive Technology - part of
rehabilitation services offering personalized interventions with
computer and assistive technology. A Network of Community-Based Resources Centers, Developers, Vendors and Associates Providing Information and Support Services to Children and Adults with Disabilities. www.ataccess.org/ ISAAC (International Society for Augmentative
and Alternative Communication) Helping Children an Adults with Little
or No Functional Speech Use of Special Techniques and Devices- Computers,
Electronic Talking Devices, Boards with Pictures, Alphabet or Words
on Them, Sign Language or Gestures.
Circle of Security - promoting attachment for
younger children with sound principles applying to all children.
Floortime - Although pertinent to autism—we
feel has application to other children with developmental relationship
issues. Infant Mental Health relevant to older children
with attachment and interpersonal concerns. Attachment Background - a web site of academic interest comprising a knowledge base for understanding attachment research and practices. Note: We very much endorse the review of Wesselman's book, "Whole Parent", as a helpful reading for parents struggling with their reactive attachment disordered child with the exception of what is described on pages 269-272, Rage Reduction (Holding Therapy) has been found to be an abusive practice and is not recommended by leading experts. Remediative Holding, pages 266-268, on the other hand can be nurturing. We also disavow any endorsement of the orgamizations and agencies in Appendix D. Attachment Library of Historical Publications
- On line articles about attachment with our recommendation one
read Robert Karen's "Becoming Attached and other Measurement
Tools". Child and Adult Relationship Building - Attachment
as it relates to parenting, and course of development as well as
adult relstionships and falling in love. Nice links to helpful resources. Reactive Attachment - A medical approach Relationship Building Building attachment and bonding in Young Children
- Go to the Magic of everyday monents on the menu. Sensory/motor Play and Relationhip Building -
Good site for parents and professionals to better bond and relate
to the child through the use of activities. http://www.center4familydevelop.com (a good site to review the newer ideas about treatment using a dyadic and family consensual approach) http://danielhughes.org/ ( promotes a emotional attunement and regulation to form attachment using playfulness, acceptance, curiosity and empathy)
to better bond and relate to their child Autism Council of Utah Autism Watch Autism Society for information and support. Autism Information Autism Speaks includes a helpful video
glossary for providers and parents to compare typical and
ASD children together. Utah Autism Resource Guide Best Practices information Parents Monitoring Autism Treatment Outcomes -
Documenting interventions. Autism Resources in Chinese, Italian, Japanese,
Korean and Spanish Provides Information about Autism to Parents
and Professionals and Conducts Research on the Efficacy of Various
Therapeutic Interventions. Autism is Treatable is a sister site to Autism Collaboration Spectrum Disorders with excellent links to alternatives
to autism. Floortime TEACCH AUTISM RELATIONSHIP BUILDING Autism Social Stories BOOKS AND AUTISM RESOURCES
Frontier Mental Health Project - team collaborative support for children and families in rural area of Utah with wraparound philosophy. www.hsmh.state.ut.us/utah_frontiers.htm Team Development - numerous ideas for maintaining team growth www.tsbvi.edu/Outreach/seehear/spring98/joseph.html Wraparound Process - the following websites review
the collaborative strength discovery based steps to a comprehensive
community and family focused interventions.
Bullying Learning Strategies and Special Instruction and Devices
Teaching to Diverse Learners LD Online - many practical solutions to processing
deficits including auditory, visual and visual motor including graphic
helps. Reading Tools Math Motor Coordination - including handwriting
solutionsanddevelopmental motor challenges. Coping Skills Sensory Processing Disorders - practical site
for undertanding and treating these developmental disorders. www.sensory-processing-disorder.com - good site ofr complete understanding and intervention; source for sensory modulation questionnaire Occupational Therapy
Communidades Unidas: Ethnic literature for children and youth Indian walk-in center Asian Association of Utah Pacific Islanders in Utah Every Culture American Academy of Family Physicians Cultural
Competence, Patient Care News, Publications, Policy and
Advocacy Utah Office of Ethnic Affairs - Pathways to Utah’s
diverse cultural organizations and commitment to support. Utah Division of Indian Affairs - Check out the seven Utah sovereign tribal governments involving 30,000 native peoples and their history and resources. www.indian.utah.gov/ Resources for Cross Cultural Health Sources for Ethnic Role Models in Science - Cultural Orientation Resource Center International Rescue Committee in Salt Lake City Utah Health and Human Rights Project LDS sources of Family Information Center for Multicultural Health Bicultural Health Services Utah Multicultural Celebration Center
ARC Brain Injury Association of Utah Vocational Rehabilitation Utah Division of Services for People with Disabilities
Utah Independent Living Center TURN Community Services Easter Seals of Utah Epilepsy Association of Utah Utah Association for the Deaf, Inc Visually Impaired - National Library
Services for the Blind Utah State Library for the Blind & Disabled www.afb.org Free Eye Exam - Eye Care America Free Eye Glasses - Lions Clubs Family Village - offers questions, resources
for people and families with disabilities. NICHCY (National Information Center for Children
and Youth with Disabilities) Source of Information on Disabilities
in Infants, Toddler, Children and Youth Information on Disabilities.
Disability Resources, Education, Outreach and Training Spanish Web Resources www.icdri.org Tourette Syndrome Association (national) www.beachcenter.org/ United Cerebral Palsy Spina Bifida
General Information on guides to the 504, IDEA,
Areas of Disabilities, and other school related procedures accessed
through the Medical Home and "Education and Schools" under
For Parents & Families at Learning Strategies and Special Instruction Bridges to Success - Special Education Resources-
a host of developmental conditions and relevance for classroom.
Rules and Regulations for Special Education, behavioral support and more. www.usoe.k12.ut.us School Health Services - comprehensive resources.
A to Z topics including obesity, nutrition, safety, surveys of youth
risk and mental health subjects. ERIC (Educational Resources Information Center) Online Data Base Provides Descriptions of Over One Million Resources that are Relevant to Education. www.eric.ed.gov/ Classroom and Home School Interventions - Steps to help parents help their children.Click on K-12 Teachers and then Parents http://www.internet4classrooms.com/ Help with Private School Payment Charter Schools Utah On-line Schools Proposed American Academy Classes with EHS Classes for
Ages 18-30 for High School Diplomas Learning Disabilities Association of Utah (LDAU)
– Office, (801) 553-9156 or csgoodell@burgoyne.com National Center for Learning Disabilities National School Pssychology: Wrights Law Special Education Resources on the Internet Student Led IEP
Medicaid and CHIP and Utah State Resource Guide
- Medicaid at a glance. SSI (Supplemental Security Income)
211 Utah - Information and Referral Access Utah - Information and Referral Universal On-line Application System (Confidential) Medical Services Daycare Resources
Medical Home Portal -
a sister site especially good for resources, family-medical-school
relations, and newsletters and conference calls, a valuable source
for special topics eg. obesity, recreation outlets, transition-education
needs foe special needs. Care Coordination topics are good reading. Medical Home Tool Kit www.pediatricmedhome.org (toolkit assessing by signing in as a health professional or parent that includes partnership building, medical information, resources and outcome measurement) Health care and Medicaid Information Children with Special Health Care Needs Center Child Development Clinic - provides assessment
and case management services for children from birth through five
years of age with special health care needs. www.health.utah.gov/cshcn/cdc/index.htm HSVS - provides statewide consultation, education,
and clinical services in the areas of communicative disorders (speech-language
development and hearing) and preschool vision screening. Birth Defects and Genetics Fetal Alcohol Syndrome Resources- for parents,
teachers, and IEP's Newborn Screening Services Eye Care for Kids Foundation Pregnancy Risk Line http://www.kumc.edu/gec/support/ www.geneclinics.org Night time wetting or Enuresis ideas for treatment at http://www.kidney.niddk.nih.gov/kudiseases/pubs/uichildren/index.htm Product Marketing for Bedwettingwww.bedwettingstore.com/ Rapid Search for Health Condition Another source for health conditions - link to
this address and click on health topics on left menu Drug Information for Mental Conditions Sleep Disorders and Hygiene for Children Children and Sleep Disorders Oral health Kids health Consumer Health
Job Search The employment section of http://justforyouth.utah.gov/ Yes Program - Summer jobs and part time employment while finishing school. @ 468-3100. Check web site at www.yes.SLCO.org SLC Mayor's Office - Job training and employment search. Call Kim Thomas 538-6129 at www.youthcity.com Part-Time Teen Work Volunteer Opportunities may be a good place to start building your portfolio. Check Youth Resource list on www.informationandreferral.org
Pediatric primary care Utah Substance Abuse Treatment Programs American Academy of Child and Adolescent Psychiatry National Institutes of Mental Health Anxiety and Depression Resources Depression/Bipolar/Mood - Helping Youth and Teens
with Mood and Anxiety Disorders. Source for Stress Thermometer Marketing for Lights for Seasonal Depressive Disorder Parents and teens talking together Youth in Mind - Interactive website to assess
child's state of mind with respect to mental health. You may want
to check out some of the recommended literature and websites as
well as the Strength and Difficulties Questionnaire over time to
look at progress. Behavior Management - ABA and
Functional Analysis. Positive Behavior and Supports in School Cognitive Therapy Cognitive Behavior Combining School and Mental Health National Association of School Psychologists -
site for fact sheets and handouts regarding children’s mental
health concerns in school.
MCH Library Info - Large body
of resources including information on obesity, underweight, vegetarian
diets etc. Click on modules on Nutrition in Children and Adolescents
as well as Overweight and Physical Activity in Children. Nutrition and Physical Activity - lots of info
on weight regulation especially with activity enhancement. Click
on address below and follow click on Physical Activity. Alpha list
of topics. New Food Pyramid - a place for children to enter
their own data and achieve personal diet recommendations. Anthem - Corporate Partner - Healthy habits for
healthy kids for nutrition and activity guide. Nutritional Stuff for Kids - personal web for
food related materials. Special Behavioral Diets - Nutritional supports
for developmental disorders with autism and/ or inattention requiring
professional support.Gluten free-casein free Salicylates and additive free Other special diets
Prescription Program in Utah Information for Prescription Services Volunteers for Health Care Pharmaceutical Research of America Drug Side Effects local pharmacies for low cost medications
Mrs. Huntsman's Youth Program - Means to advocate
and empower youth, especially through recognition, mentorship, and
highlighting needs. Project Resilience - important work of the Wolin’s
showing off their products and books as well as offering short pieces
from their philosophy and resources. Empowerment - through self-determination International Resiliency Project - societal and
cultural contributions to constructing strengths of spirit. Positive Psychology - Seligman’s contribution
to cognitive practices effecting resiliency at the University of
Pennsylvania. www.resilnet.uiuc.edu/ Search Institute - dedicated program to enhance
children’s development using protective factors. These assets
boost student achievement. Click on Research and Insights and Evidence.
Oregon Resiliency Project - curricula for preventing
major mental illness including anxiety and depression. Resiliency: What We Have Learned by Bonnie Benard - a beautiful contemporary book, distilling what works and makes a difference based on the historic seminal work of Werner and Smith of the Children of Kawaia longitudinal study of more than 700 people across four decades Checklist and background discussion for Resilience in Children
Information for Parents and Teens and Health Providers
- managing many ways to modify menstrual cycles.
Resources and Discussion Groups Siblings Groups Autism - Mental Illness
Greatest Places Nickelodeon Games Kids Health - For kids and adolescents on a variety
of health stuff. Kids and Nutrition Just for Youth Starbright Teens: - A Web site for teens who are
chronically ill. Youth in Mind - Interactive website to assess
child's state of mind with respect to mental health. You may want
to check out some of the recommended literature and websites as
well as the Strength and Difficulties Questionnaire over time to
look at progress.
Child Anxieties - nice for everyday occurrences
with resources and ideas. Check disorders and book section. National Mental Health Association - complete
listing of many mental disorders. Click on mental health info and
fact sheets. National Center for Trauma and Stress - search
for variety of tools. Soulrise - good articles on stress and coping
in children-other ideas supporting diverse religious based beliefs.
Divorce in Helpguide - practical sources for
children and families challenged by distress of separation and divorce.
Click on the left menu Children and Parenting with three interesting
topics of attachment, divorce and separation and stepfamilies
as choices. Children's Service Society-support
for “Grand familie or grandparents and other kin who take
over parenting responsibilities with education, support groups and
information. Grief and Stress Comprehensive Resources Depression and Loss
The Sharing Place - center for supporting children's grief with both adult and child groups. www.thesharingplace.org/ Grieving Child - site supporting children, teens
and families as they move through the healing process. Understanding the Grief Process - many ideas
for supporting children and parents in loss. Grief Support Groups - College of Nursing at
the U of U offers 8-week meetings at little cost or with scholarship
help. Depression in Children and Adolescents with a Chronic Disease - helping youth deal with both issues. http://www.aboutourkids.org/articles/depression_in_children_adolescents_chronic_disease Young caregivers - source of
resources.
Transition Information - Especially through the
school gradespan. Look for Transition Issues on the Medical Home
Portal - For Parents & Families tab. SSA Online - The worksite - Youth with Disabilities Adolescent Health Transition Project TelAbility - Enhancing the lives of children
with disabilities. The Youthhood National Transition Network - Institute on Community Integration
Casey Life Skills HRTW Kids Health for Teens
Medical Home Portal Behavior Management - ABA and Functional Analysis. Cognitive Therapy
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